joanne's journal

update on moorfields

Tue, 08 Apr 2008 07:13:26 GMT

So yesterday morning me and my babe were up with the larks and out of the door by 7:15. Went and collected mum and went to the bus top to go to London.

we sat near the back so we were near the toilet for Bryce lol never again. someone done a poo....it made the whole bus smell and i had to breath through my mouth for 10 minutes lol.

We got into London after 4 hours. my boy was a star and didnt cause one bit of fuss for the whole trip. went and grabbed a quick coffee and snack then set off again.

As you may or may not remember my mum has reumatoid arthritis, so she was scared to go on the tube so we opted for a taxi as neither of us really knew where to go. £20 it cost, i nearly passed out on the spot.

got to the hospital and straight away you can see the difference between nhs and going "private". no rooms full of people waiting, no waiting about, everyone who talked to us smiled and made us feel special.

The first person we saw was the ortoptist. she was lovely and was very good to Bryce. We then went on to see the consultant. she also was an angel and very good with my babe.

The end result was very positive. HE ISNT EVER GOING TO GO BLIND!!-IPSWICH HAVE BEEN TELLING ME THIS FOR 2 YEARS

He has a stigmatism, the eye isnt round but oval-Ipswich have never told me this

He has a lazy eye- again never told this before.

He see's through his bad eye in 2D as apposed to 3D- undigagnosed before.

He has a very small optic nerve- never told this at Ipswich.

He has got periferal vision (can see out of the corners of his eye) but cannot see properly what is right in front of his nose.

The consultant went on to say there are lots of tests they want to do as she genuinly wants to help my boy and can see its killing me inside that we have been let down so badly by the local hospital. She was actually appalled at the way he had been treated.

As she was telling us about these tests all i could see were £ signs and was wondering where on earth i was going to find all this money as i couldnt expect my mum and dad to pay for it all, so imaging my surprise when the consultant straight away told me she was going to put him on her nhs list so we dont have to pay anymore money!

So in 5/6 weeks time we will be making the trip to London again to see her again. we will then have to go back to have electrical tests on his brain, and then sometime after that he will be admitted as they want to do a brain scan to get a proper look at this optic nerve.

You must of all had your fingers crossed for me yesterday so thank you so much for that!

we will be going on the train next time lol although its double the price of the taxi its only a mile from the hospital so we wont have massive taxi fares to pay!

Charlie has just left for his new school so i will feel sick all day. Bethany has got an appointment at hospital today for her heart.

Take care love you all

Joanne

ps is this the longest entry i have ever written lol

Sun, 06 Apr 2008 17:28:21 GMT

ok so the last few months have been colourful to say the least.

had loads of trouble from my boy charlie. the condensed version is that he really hasnt been able to settle in the high school. we have had various incidents ranging from bullying to the school even "lost" him one day, although he wasnt really lost he was there all along, the comunication between the teachers is obviously awful. Was a pity they didnt realise he was ok before my mum and the local policeforce were all out looking for him while i went into meltdown in the policestation. he has been asulted there several times so i decided to pull him out 2 weeks before the easter holidays started.

He is starting a new school on tuesday so please send him positive thoughts poor boy!!

Bethany has been generally ok with nothing to report so thats good.

Bryce has been ok too! still having his accidents on a weekly basis...... me and mum are taking him to Moorfields private eye hospital tomorrow as are local hospital have basically given up with his eyesight and have resigned themselves to the fact that he is going to go blind in his right eye. I, on the other hand cannot believe this can be allowed to happen so we are going to see what they say tomorrow. fingers crossed for that as well!

On to me! Nothing to report lol. still plodding on as ever. have joined the gym and am being very good with what i eat. have lost over a ston so far. only another 4 to go "sigh"

had an excellent night last night at the lions club swimming gala. its specifically for people that have a dissability. Bethany has been going for years. Charlie done it as well yesterday for the first time. I felt a bit sorry for the other people as he won every race he went in as he is like a dolphin, but i was proud all the same lol.

Bethany done really well also and was even presented with a trophy at the end of the night for trying so hard.

Bethany getting her award.

enjoy the pictures!

If theres anything else you want to know just ask!!!!

I'm still a reader....but am mostly silent lol

lots of love Joanne

Tue, 01 Apr 2008 17:40:53 GMT

HELLO

Is my journal still on anybodys alerts?

If it is i will start writing again.

Leave a comment if you get this.......please!!

Hugs to everyone

Sun, 23 Dec 2007 16:17:36 GMT

HAPPY CHRISTMAS TO YOU ALL.

HOPE ALL YOUR DREAMS COME TRUE IN 2008.

FOR ALL THAT ARE ILL LETS HOPE YOU ARE BETTER SOON.

FOR ALL THAT ARE SAD, A BIG HUG JUST FOR YOU.

ALL MY LOVE

JOANNE

p.s thank you for my xmas cards you sent Sara and Jan

Thu, 13 Dec 2007 16:06:51 GMT

Tue, 11 Dec 2007 11:25:17 GMT

As promised a few more pictures.

These were from the day we went and done our dolphin swimming.

I cannot even begin to explain the feelings i had the day we went to do this....it was a total rush, and even though everyone said the water was cold i felt all warm inside.

I must just add also that my children were absolutely brilliant the whole time we were away and were a credit to me.

Let me know when you have seen enough pics, i could be adding them for weeks at this rate lol.

lots and lots of love and kisses

Joanne

Mon, 10 Dec 2007 16:38:32 GMT

We are back from orlando!

feeling bad with the jet lagg at the moment so will put more photos up soon when i feel better, have got over 400 to choose from lol

hope you are all well

love joanne

monday

Fri, 23 Nov 2007 12:34:07 GMT

lets hope virgin airlines dont serve mushy peas on monday when we go to Orlando!!!!

will catch up with everybody when we get back

take care all of you

love you all

Joanne

this and that

Tue, 13 Nov 2007 16:36:57 GMT

hello everyone how are you all.

yes i am still here, reading all of your journals daily as the alerts appear in my email in box or pop up on the screen.

have been having quite a rough time here of late. mostly problems with charlie boy and his new school. i was phoned last week to say he had had an accident and could i go up.....i said ok i will be as quick as i can...they said please asap there is an ambulance on ots way!

so off i race and get to school. no ambulance to be seen so i calmed down a bit. started walking through the school with a very worried receptionist. "it cant be that bad if i beat an ambulance" i said.....they are up the field with him already, was the reply i got!

so i ran....and ran....and ran. how i didnt pass out i will never know.

he was on a spinal board when i got there with neck colar on and loads of straps to keep him imoblised.

they then went on to give him morphine. at this point i was close to collapse myself.

went to the hospital and after he had been checked over by the doctor, while we were waiting to have xrays, he told me what had really happened. an older boy, year 11, picked him up and threw him to the ground as he thought my boy had spat at a girl!

you can imagine how i reacted.

i straight away phoned the school and told them what had happened and named the boy who had assulted mine.

we were finally discharged, although they wanted to keep him in for observation, with a wiplash and concussion, with strick instructions to have him with me at all time over the next few hours.

he still hasnt gone back to school as he is refusing to go...who can blame him.

on a nicer not we are off on our holiday to Orlando on the 26th November, so less that 2 weeks now! any good advice for me as regards to the travelling and things to do will be greatly welcomed!

take care everyone

still love you all lots!

Joanne

How to Make a Woman Happy

Mon, 29 Oct 2007 08:50:42 GMT

How to Make a Woman Happy

It's not difficult to make a woman happy. A man only needs to be:

1. a friend
2. a companion
3. a lover
4. a brother
5. a father
6. a master
7. a chef
8. an electrician
9. a carpenter
10. a plumber
11. a mechanic
12. a decorator
13. a stylist
14. a sexologist
15. a gynaecologist
16. a psychologist
17. a pest exterminator
18. a psychiatrist
19. a healer
20. a good listener
21. an organizer
22. a good father
23. very clean
24. sympathetic
25. athletic
26. warm
27. attentive
28. gallant
29. intelligent
30. funny
31. creative
32. tender
33. strong
34. understanding
35. tolerant
36. prudent
37. ambitious
38. capable
39. courageous
40. determined
41. true
42. dependable
43. passionate
44. compassionate

WITHOUT FORGETTING TO:

45. give her compliments regularly
46. love shopping
47. be honest
48. be very rich
49. not stress her out
50. not look at other girls

AND AT THE SAME TIME, YOU MUST ALSO:

51. give her lots of attention, but expect little yourself
52. give her lots of time, especially time for herself
53. give her lots of space, never worrying about where she goes

IT IS VERY IMPORTANT:

54. Never to forget:
* birthdays
* anniversaries
* arrangements she makes

HOW TO MAKE A MAN HAPPY

1. Show up naked
2. Bring food